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GeneTrust Network

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GeneTrust Network

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Nnamdi Oct. 26, 2025
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Challenge: Governance

Industries

Health and wellnessother

Technologies

Blockchain & infrastructureNeuro-symbolic AI

Tags

AIDF rules

Description

GeneTrust Network decentralizes patient data governance for sickle cell and other blood disorders. Patients control access to their genetic profiles via blockchain consent layers, granting research or clinical use transparently. It transforms data from exploited assets into community-owned resources that drive fairer medical breakthroughs.

Detailed Idea

Alignment with DF goals (BGI, Platform growth, community)

Problem description

Genetic data from African and global minority patients are routinely extracted for research without consent or equitable return. Data monopolies block collaborative drug development and create trust deficits between patients, labs, and regulators.

Proposed Solutions

A blockchain-based data vault ensures patients’ ownership and auditability. Smart contracts manage data-sharing rights, while AI analytics generate collective insights for therapy innovation. Communities earn tokens from approved data use, promoting ethical research funding.

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